There have now been 6 successful National Patient Information Days on cystinuria in the UK. These are designed for patients and families to learn more about cystinuria and offer the opportunity to meet and network with other people with the condition. The days are free and lunch/ refreshments are provided. Following the meeting in 2019, there was a gap due to COVID, but the latest meeting was recently held on Saturday 27th April in Newcastle. Future events are being planned in 2025 and 2026.
Date: Saturday 27th April 2024
Venue: Institute of Transplantation, Freeman Hospital, Newcastle, NE7 7DN
Programme:
0930 - Registration
1015 - Cystinuria: The Basics
1045 - Drugs and Cystinuria
1115 - Coffee / Tea/ Water Break
1145 - Operations and Cystinuria
1230 - Lunch
1330 - Research into cystinuria
1415 - Smaller group workshops (diet / genetics)
1600 - End
Please register using the form below so we have a idea of numbers for the day.
Previous meetings:
First Meeting - February 2014 - London
Second Meeting - April 2015 - Bristol
Third Meeting - March 2016 - Newcastle
Fourth Meeting - April 2017 - London
Fifth meeting - March 2019 - London
Sixth Meeting - April 2024 - Newcastle