Patient Day

There have now been 6 successful National Patient Information Days on cystinuria in the UK. These are designed for patients and families to learn more about cystinuria and offer the opportunity to meet and network with other people with the condition. The days are free and lunch/ refreshments are provided. Following the meeting in 2019, there was a gap due to COVID, but the latest meeting was recently held on Saturday 27th April in Newcastle. Future events are being planned in 2025 and 2026.

Date: Saturday 27th April 2024 

Venue: Institute of Transplantation, Freeman Hospital, Newcastle, NE7 7DN

Programme:

0930 - Registration

1015 - Cystinuria: The Basics

1045 - Drugs and Cystinuria

1115 - Coffee / Tea/ Water Break

1145 - Operations and Cystinuria

1230 - Lunch

1330 - Research into cystinuria

1415 - Smaller group workshops (diet / genetics)

1600 - End

Please register using the form below so we have a idea of numbers for the day.

Previous meetings:

First Meeting - February 2014 - London

Second Meeting - April 2015 - Bristol

Third Meeting - March 2016 - Newcastle

Fourth Meeting - April 2017 - London 

Fifth meeting - March 2019 - London

Sixth Meeting - April 2024 - Newcastle