There have now been 4 successful patient information day's held in the UK. These were designed for patients and families to learn more about cystinuria and to meet other people with the condition and were organised by the Rare Renal Disease Group (RaDaR). The days are free and lunch/ refreshments are provided. Next Meeting: To be confirmed Last Meeting: Venue: Roben's Suite, 29th Floor, Tower Wing, Guy's Hospital, London SE1 9RT Programme:  Previous meetings: First Meeting - February 2014 - Guy's Hospital in London - Presentations available on the Rare Renal Diseases Website Third Meeting - March 2016 - Newcastle |