Patient Day

There have now been 4 successful patient information days held in the UK. These are designed for patients and families to learn more about cystinuria and offer the opportunity to meet and network with other people with the condition. The days are free and lunch/ refreshments are provided.

Registration has now closed for this event. If you wish to attend please contact us with your email address via the Contact page as we may get people pulling out.

Next Meeting:

National Cystinuria Patient Day

Saturday 30th March 2019

Robens Suite, 29th Floor Tower Wing, Guy's Hospital

Cost: Free to patients and relatives (but registration is essential)




Final Programme:





Previous meetings:



Third Meeting - March 2016 - Newcastle

Fourth Meeting - April 2017 - London